The Personal Genome Project
The Personal Genome Project was founded in 2005 and is dedicated to creating public genome, health, and trait data. Sharing data is critical to scientific progress, but has been hampered by traditional research practices—our approach is to invite willing participants to publicly share their personal data for the greater good.
Sharing Personal Genomes
Participation
Donating your genome and health data to science is a great way to enable advances in understanding human genetics, biology, and health. We seek volunteers willing to donate diverse personal information to become a public resource.
Enrolling in the Harvard PGP is an online process. Individuals considering participation should closely review our study guide and consent forms. To qualify for enrollment, prospective participants must complete an online exam to demonstrate their comprehension of the risks and protocols associated with being a member of the Harvard PGP.
Requirements
Willing to share genetic, health and trait data in a public and non-anonymous manner.
United States citizen or permanent resident.
At least 18 years of age.
Capable of giving autonomous consent. We do not permit enrollment through legal guardianship, for example.
Current employees and students of the principal investigator (George Church) are not eligible.
Identical (monozygotic) twins are welcome, but both twins must complete the enrollment process to be eligible.
Personal Genome Project
The Open Humans Foundation helps support the Global Network of Personal Genome Projects. These studies are dedicated to using an ethical "open consent" format to create public resources of genome data, health information, and cell lines.
GET Conference
Since 2010, we've also organized the GET Conference, an annual gathering that brings together leading thinkers to discuss how we measure and understand people and their traits. Recent years have also featured GET Labs, where researchers bring their studies to recruit and work with participants, and the GETy Awards, honoring excellence in participant-centered research.
Team
Staff
Madeleine Ball
Director of Research
Jason Bobe
Executive Director
Beau Gunderson Senior Software Engineer
Hope Kroog
Administrative Assistant
Board of Directors
John Cammack
Treasurer
George Church
President
Juan Enriquez
Steven Keating
Michelle Meyer
Secretary
Ryan Phelan
Donate
The Open Humans Foundation is a registered 501(c)(3) nonprofit corporation. Donations help support and expand our programs, furthering our mission.
(Note: Our nonprofit was formerly named "PersonalGenomes.org", and this is still reflected in some of our current materials.)
Ways to Give
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Send a check payable to Open Humans Foundation to the following address:
Open Humans Foundation
423 Brookline Avenue, #323
Boston MA 02215-5410 -
Double your contribution by participating in your company's matching gifts program.
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Gifts of Stock: Please send an email to giving@personalgenomes.org for more information.
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Corporate Giving: Please send an email to giving@personalgenomes.org for more information.
For further information about charitable giving, please contact us at giving@personalgenomes.org.
Tax Information
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Federal Employer Identification Number (FEIN): 26-2973607
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IRS Determination Letter: PersonalGenomes.org 501(c)(3) (PDF)
(We will receive a new determination for Open Humans Foundation in coming months.)
Contact Us
(Note: Our nonprofit was formerly named "PersonalGenomes.org", and this is still reflected in some of our current materials.)
Email is our preferred contact method! You can email us at: general@personalgenomes.org
Open Humans Foundation
423 Brookline Avenue, #323
Boston MA 02215-5410